WELCOME TO THE RESEARCH WEBSITE
OF DR. ANITA CATLIN
Transition from Cessation of Curative Efforts to Purely Palliative Care for Neonates
I am interested in your thoughts and experiences as a care provider in caring for neonates who are critically ill or who have life limiting conditions.
There are some ill newborns in which attempts at curative care, i.e., using technology and medications to save their lives, is not working or is no longer the best choice of therapies.
These infants are then candidates for stopping the curative therapies and transitioning to purely palliative, or comfort, forms of care.
The area of transition to purely palliative care for newborns remains complex. Identifying that threshhold that tells us when a child is ready for purely end of life comfort care has been difficult.
This survey is attempting to expand knowledge on the topic by exploring the experiences of nurses and physicians working with critically ill children and families.
Funding for this study was granted by the Sonoma State University RSCAP Mini-Grant. Institutional review board approval was granted by Sonoma State University IRB #1760.
Consent
You are invited to participate in a study of Physician and Nurse Opinions of Transition from Cessation of Curative Efforts to Purely Palliative Care for Neonates being conducted by Dr. Anita Catlin of Sonoma State University. I hope to learn the opinions of physicians and nurses about how the transition is made from caring for an ill newborn with technological life supportive therapies to changing to purely palliative end of life comfort care. You were selected as a possible participant in this study because you are a nurse or physician in the practice of pediatrics.
If you decide to participate, you will be asked to answer the following 35 questions. I anticipate this should take no more than 15-30 minutes of your time. I anticipate that this should cause you no discomfort. Benefits include the amassing of further knowledge in the field of critically ill newborns; you will not receive any personal benefit by participating.
Any information that is obtained in connection with this study and that can be identified with you will remain confidential. Your name is not attached to the study. The data in aggregate will be published.
Your decision whether or not to participate will not prejudice your future relations with Sonoma State University. If you decide to participate, you are free to withdraw your consent and to discontinue participation at any time without prejudice.
If you have any questions, please contact me. My name is Dr. Anita Catlin. I am a nurse ethicist and professor of nursing specializing in neonatal end of life care. I can be reached at 707 664 2640 or catlin@sonoma.edu. You may also contact the Sonoma State University Institutional Review Board at 707-664-2448.
You are making a decision whether or not to participate. Your click on "yes" on the website indicates that you have decided to participate having read the information provided above.
Thank you very much.
Anita Catlin, DNSc, FNP, FAAN
Click here to go to survey:
http://www.zoomerang.com/survey.zgi?p=WEB226N5LP6P4N
